MEET OUR DIRECTORS AND OFFICERS
Amy L. Marini RN, BSN, CHTP
Amy has been a registered nurse focused on pediatric nursing for over 18 years. Her passion to help children has been lifelong. Her clinical experience started with staff nursing then transitioned to the role of clinical education specialist at the largest pediatric rehabilitation facility in the country for 13 years.
This coupled with ongoing private duty in home pediatric nursing has prepared her for the most important nursing role yet: mom of three, two of whom have Cockayne Syndrome. Since the diagnosis of her children in 2015 she has focused on creating awareness for Cockayne Syndrome and strives to help other families understand the complexities of the diagnosis so they can in turn advocate and help their children as much as possible.
Amy has her Bachelors in Nursing from William Paterson University and is also a Certified Healing Touch Practitioner.
Lynne Callea CHCP
Vice President, Director of CME Program Development and Management, at Haymarket Medical Education (HME). HME is a joint provider of continuing education for Physicians, Nurses, and Pharmacists, among other professions.
Ms. Callea has worked in medical education for the last 20+ years. Her career and expertise in working with faculty and producing programs ranges from small, live focus groups to large symposia at national medical meetings as well as multimedia educational programs reaching all audiences, in a multitude of therapeutic areas.
Prior to working at HME, she was employed by Medical Economics – publisher of the PDR -- and played a key role as part of the project and editorial team ofthe print publication Contemporary Pediatrics where she engaged on an ongoing basis with pediatric thought leaders across the globe and worked directly with the editor-in-chief in producing educational activities under that publication’s banner.
In her private life she is married with children and grandchildren and throughout that “role” has chaired and/or engaged in fund raising efforts for grammar and high schools alike and is no stranger to those types of live events as well.
Laura J. Niedernhofer M.D., Ph.D.
Director, Masonic Institute of the Biology of Aging and Metabolism
Medical Discovery Team Biology of Aging
Professor Biochemistry, Molecular Biology & Biophysics
University of Minnesota, School of Medicine
Nikki Herson Cohen
Nikki is a mother of four children, one of whom suffers from Cockayne Syndrome. Previously, she has held a senior management position in the automotive industry in Maryland. Her current passion is educating and advocating for children and families living with Cockayne Syndrome. Nikki works tirelessly to bring CS into the mainstream, fundraising and raising awareness of Cockayne Syndrome in the medical community.
Nikki holds a triple BA in political science, sociology and psychology as well as an MBA from the George Washington University in Washington, DC.